© Springer International Publishing Switzerland 2015
Andrew M. Freeman and Howard D. Weinberger (eds.)Cardiac Sarcoidosis10.1007/978-3-319-14624-9_1515. Patient-Centered Care for Sarcoidosis
(1)
Division of Cardiology, Department of Medicine, National Jewish Health, 1400 Jackson St., Denver, CO 80206, USA
Abstract
Caring for patients with sarcoidosis is a challenge. As a relatively rare disorder of unknown etiology, with the potential to affect multiple organ systems in an unpredictable fashion, a patient-centered rather than disease centered approach is very important. Some of the keys to a patient-centered approach include health literacy, patient education, shared decision-making, patient-centered outcomes, and a multidisciplinary team approach which actively involves the patient. These components for a patient-centered approach will be discussed in this chapter.
Patient-Centered Care
Caring for patients with sarcoidosis is a challenge. As a relatively rare disorder of unknown etiology, with the potential to affect multiple organ systems in an unpredictable fashion, a patient-centered approach is very important. Patient-centered care is defined as “care that is respectful of and responsive to individual patient preferences, needs, and values, and ensuring that patient values guide all clinical decisions” [1]. At first glance, the concept seems redundant to the practice of good medicine to warrant deliberate and prescribed reinforcement by the medical community today. However, a twentieth century emphasis on pathophysiology and evidence-based medicine has arguably given rise to medical care that has gradually become “disease-centric.” A patient-centered approach is a method of care that places a sharp focus on the patient rather than on the disease, emphasizing effective communication, engagement and empowerment of the patient as an active rather than passive participant in his/her care in addition to empathy, transparency, and a sense of partnership between patient and physician.
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