Patient-Centered Care for Sarcoidosis




© Springer International Publishing Switzerland 2015
Andrew M. Freeman and Howard D. Weinberger (eds.)Cardiac Sarcoidosis10.1007/978-3-319-14624-9_15


15. Patient-Centered Care for Sarcoidosis



Darlene Kim  and Howard D. Weinberger 


(1)
Division of Cardiology, Department of Medicine, National Jewish Health, 1400 Jackson St., Denver, CO 80206, USA

 



 

Darlene Kim (Corresponding author)



 

Howard D. Weinberger



Abstract

Caring for patients with sarcoidosis is a challenge. As a relatively rare disorder of unknown etiology, with the potential to affect multiple organ systems in an unpredictable fashion, a patient-centered rather than disease centered approach is very important. Some of the keys to a patient-centered approach include health literacy, patient education, shared decision-making, patient-centered outcomes, and a multidisciplinary team approach which actively involves the patient. These components for a patient-centered approach will be discussed in this chapter.



Patient-Centered Care


Caring for patients with sarcoidosis is a challenge. As a relatively rare disorder of unknown etiology, with the potential to affect multiple organ systems in an unpredictable fashion, a patient-centered approach is very important. Patient-centered care is defined as “care that is respectful of and responsive to individual patient preferences, needs, and values, and ensuring that patient values guide all clinical decisions” [1]. At first glance, the concept seems redundant to the practice of good medicine to warrant deliberate and prescribed reinforcement by the medical community today. However, a twentieth century emphasis on pathophysiology and evidence-based medicine has arguably given rise to medical care that has gradually become “disease-centric.” A patient-centered approach is a method of care that places a sharp focus on the patient rather than on the disease, emphasizing effective communication, engagement and empowerment of the patient as an active rather than passive participant in his/her care in addition to empathy, transparency, and a sense of partnership between patient and physician.
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Jul 10, 2016 | Posted by in CARDIOLOGY | Comments Off on Patient-Centered Care for Sarcoidosis

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