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ECMO is an extraordinary technique applied to a small number of patients. Registries are useful in these circumstances to ensure that experience and learning can be shared among many clinicians.
The Extracorporeal Life Support Organization registry
The ELSO maintains a data registry. This was started in 1989 (see Chapter 1: In the beginning), but data goes back to 1976. It has more than 100 centres contributing data. It was initially essentially paediatric.
Data entry is voluntary but requires adhesion as a member. Members pay an annual fee that allows them to enter data and receive regular reports, including comparison of outcomes with similar centres.
The registry summarises cumulative experience, is open for individual queries about specific patient outcomes, supports observational studies and allows benchmarking.